Key Takeaways
- Disability often involves ongoing grief, not just one-time loss.
- Losing everyday abilities (like dressing, walking, or reaching objects) can trigger:
- shame
- fear of the future
- identity loss
- These reactions are normal human responses, not signs of weakness.
- Unprocessed grief does not disappear; it tends to resurface during stressful or vulnerable moments.
- Trying to “power through” disability-related losses can:
- increase anxiety
- slow emotional adaptation
- create an internal conflict with reality
- Emotional adaptation often requires:
- acknowledging the loss
- processing the grief
- separating self-worth from independence
- Surface frustrations (e.g., needing help to dress) often reflect deeper fears such as:
- becoming a burden
- losing personal value
- losing a hoped-for future
- Identifying and addressing these deeper fears can:
- reduce emotional overwhelm
- turn practical limitations into logistical challenges instead of identity crises
- Grief can function as information, revealing unmet needs and values.
- Listening to grief is not self-pity; it is a form of self-respect that supports long-term adjustment.
- Losing everyday abilities (like dressing, walking, or reaching objects) can trigger:
I suspect this feeling is something that many of us share. Do you ever have one of those moments when you realize that something you used to do without thinking is just gone. For me, it was walking without a cane at 16 years old, gone. Walking without a walker at 39 years old, gone. Dressing by myself at 44 years old, gone.
"What Does It Say About Me?"
I remember that day when my clothes were on the floor and I just couldn't dress. My body would not allow it. Even before thinking how inconvenient this was becoming, my first thoughts were like a wave of shame. What does it mean about myself that I can't dress anymore? What will they say about me that I can't dress?
And then the fear kicks in: "What if this is not temporary? Oh, all the stuff I won't be able to do anymore... What if this is just my life now?"
I think we taught that grief is only for big one time losses. But it's not. It's also about those small losses that pile up over time and these questions about shame and the fear of the future, they're not a sign that you're weak. They're a sign that you're human and you are allowed to feel this.
Giving yourself permission is the first good step to allow yourself to move forward. It's not about getting over it, it's about moving through it.
When Grief Shows Up Uninvited
The tricky thing about grief is that if you try to sweep it under the rug, it doesn't work. It doesn't disappear. It waits. It gathers strength, and then it jumps on you at the worst possible moment.
You might be having a perfectly fine day and then BAM!, it makes you cry in the cereal aisle because you cannot reach that top shelf.
That's not being dramatic. That's the grief you try to ignore, finally, demanding to be heard. I went through this when needing help to dress. At first, the idea of someone seeing me naked, somebody different every time was so vulnerable and overwhelming. I was exposed and the shame was huge.
I tried to power it through and pretend it wasn't a big deal, but that just made me more anxious and moody. The shift happened when I stopped fighting it, I had to acknowledge the feeling. "Okay, this feels awful. This is embarrassing me." And by actually listening to that feeling instead of shoving it down, something changed in me. It slowly shifted from, "I'm ashamed people are seeing me naked" to, "I'm genuinely happy and grateful that they're there to help me because it spares my energy and then I'm ready to go out in the world and help other people."
And that's the thing: we can get used to absolutely anything in time. Our capacity to adapt is incredible, but we can only get used to something after we process the grief of what we lost. Avoiding that grief, pretending that you're fine when you're not. That's what's actually holding you back from adapting and getting used to things.
It keeps you stuck in a fight with reality, but there's a balance because listening to grief is one thing and letting it consume you is another one. The goal is not to live in sadness forever. The goal is to honor the feeling so that you can integrate it, integrate the loss, and keep building up your fire, your life.
The Questions Behind the Questions
So how do you stop this cycle? How do you listen to the grief without getting sucked in it? Well, for me, journaling was the key. It's not about writing a perfect essay; it's about getting the messy, ugly, real thoughts out of your head and onto the paper when you can actually look at them.
Take that question: what does it say about me that I cannot dress myself anymore? If you sit with that, what's underneath it? For me, it was this deep seated fear. It says I'm a burden. It says I'm less of a person. It says I've lost my worth. It says half of the stuff I need to do in life are gone. That's the real question.
The surface problem is, "oh, I can't put my underwear and my socks on." But the core fear is about my value as a human being and my hopes for my life. Same with "what if this is not temporary?" That question is rarely about a specific task. It's a mask for a bigger fear: what if I lose the future that I dreamt of? What if I can't travel anymore? What if I can't be the partner or the parent I wanted to be? When you can identify that base fear, you can finally address the actual root cause.
You can't argue with socks, but you can have a conversation with the idea that your worth is tied to your independence. When you solve the core fear, the surface problems, they become so much manageable. If I can reassure myself that my value is not defined by my ability to dress myself, then needing help with socks is just a logistical issue. It's not an existential crisis anymore. It turns grief from this overwhelming trap into a practical tool that was showing me something.
You're not just feeling sad. You are gathering data about what you truly need to help and to heal yourself. Honoring these feelings that's not wallowing. It's a strategic act of self-respect that gives you clarity and you can move forward.
Listen, I know this is hard and grief cycles back around and that's normal, but the one thing I want you to remember is this: listening to your grief, truly honoring that feeling of loss, it's not a setback, it's an act of self-respect. And it's how you build a life that is authentic to who you are now,
I'd love to hear from you. What loss are you currently grieving? It doesn't have to be big Sometimes just saying it out loud or writing it down is the first step. We're in this together and then it gets better. I'll tell you about it in other videos.
Questions and Answers (Q&A)
Is it normal to grieve losing abilities due to disability?
Yes. Grief is a common response to losing physical or cognitive abilities, even when the losses seem small or gradual. These changes can affect identity, independence, and future expectations, which makes grief a natural emotional reaction.
Why do I feel ashamed when I need help with basic tasks?
Needing help can challenge internal beliefs that independence determines personal worth. The shame often comes from deeper fears such as being a burden or feeling less valuable as a person.
Can unprocessed grief affect adaptation to disability?
Yes. Avoiding or suppressing grief can increase anxiety and make it harder to adjust to new limitations. Emotional processing often supports practical adaptation over time.
What is the difference between honoring grief and being consumed by it?
Honoring grief involves acknowledging feelings of loss so they can be understood and integrated. Being consumed by grief typically involves rumination without processing, which can prevent forward movement.
Why do small losses feel so overwhelming?
Small functional losses can symbolize larger concerns, such as losing autonomy, future plans, or social roles. The emotional impact often reflects these deeper meanings rather than the task itself.
How can I cope with identity loss after becoming disabled?
One helpful step is identifying fears beneath practical limitations. For example, needing help to dress may reflect concerns about dignity or worth. Addressing these underlying beliefs can make the practical limitation feel more manageable.
Does accepting help mean losing independence?
Not necessarily. Accepting help can conserve physical or emotional energy, allowing individuals to participate more fully in meaningful activities.
How can journaling help with disability-related grief?
Journaling can externalize thoughts and emotions, making it easier to identify underlying fears or beliefs. This process may help shift perceived losses from existential threats to manageable logistical challenges.
Is grieving your old self a setback?
No. Acknowledging grief can support emotional adjustment and help individuals build a life that reflects their current reality rather than past expectations.
Etienne LeSage
